… and rolls around
In her 2003 essay, Spoon Theory, Christine Miserandino describes what it feels like to live with chronic illness. She tells the story of being with her friend in a diner when the friend asked her what it felt like to have Lupus. Christine went around the diner and collected twelve spoons from nearby tables. She… Continue reading Outta Spoons
Just a couple of days ago, the FDA approved a new treatment for my disability, Spinal Muscular Atrophy (SMA). It is called Evrysdi (the chemical compound was called Risdiplam) and, unlike the previous major therapy, Spinraza, it comes in the form of a pill rather than a spinal injection. This means that people like me… Continue reading To Cure or Not to Cure?
This week I was talking to a friend online (as I often do these days) and we were discussing the different models of disability. The changing model of disability has always been a really interesting concept to me, not only because it legitimizes and makes concrete some of the more abstract concepts that I struggle… Continue reading Introduction to the Models of Disability
As you may have heard elsewhere, today is the 30th anniversary of the passage of the Americans with Disabilities Act (ADA). Before the ADA was passed, public facilities were only required to be accessible if they received federal funding. The ADA widened the net of protections and has been the most substantial legal step towards… Continue reading The ADA Turns 30!
While I'm not going to promise that this will be my last COVID-related post, I do promise that I will change the subject after this week. I know it's been a lot for everybody both inside and outside of the disability community to hear about constantly, but it's important that we don't forget that people… Continue reading “Sorry, But That’s Impossible”: Accommodations in the Age of COVID-19
Sometimes I'll come up with an idea for a blog post and spend like weeks hyping it up in my own mind before I write it. Then, by the time I get to it I draw a complete blank about what to say. This is one of those posts. How do I even begin talking… Continue reading The One Where I Talk About COVID-19
When I wrote my last substantial post two years ago, I was winding up for my first year of law school, bright-eyed, bushy-tailed, and ready to take on a new journey. Well, now I'm two years in and have one year left and I can say that going to law school has been the best… Continue reading Law School
Welcome (back) to the blog! If you're new to The Girl Who Sits, please peruse my blog and let me know what you think! If you've been here before, thanks for your patience during my long hiatus. Law school, man. Come back Sunday for more on that! If you're not following the Facebook, Twitter, or… Continue reading Welcome to the new site!
Trigger Warning: Suicide, illness Growing up, I was in the hospital A LOT. I had severe respiratory illnesses all throughout my childhood multiple times a year, and every time I would get sick, my parents would be by my side as often as they could be. I was pretty much never alone in the hospital… Continue reading Mental Health Part Three – I’m Not a Burden
My parents often tell me about an experience they went through right before I started elementary school. They had a meeting with my principal where they took a tour of the school and made sure that it would be accessible and right for me. It was a public school, but they still wanted to make… Continue reading Access to Education
