Hey all, this is just a short post to say that my article about the disability marriage penalty was PUBLISHED on the Saint Louis University Journal of Health Law & Policy website here! In case you need more context, I wrote about the way that this issue personally affects me back in January. You can … Continue reading Marriage and Disability Update
This is long and boring to read, just like a law school assignment.
I'm going to be one of those Twitch streamers the kids are talking about these days.
UPDATE: The article that I mention I wrote for the Saint Louis University Journal of Health Law & Policy can now be found here. I know, I know, it's been forever. I didn't intend to take such a long break from blogging, but last semester really kicked my butt work-wise and I could not dedicate … Continue reading The “Fundamental” Right to Marriage
In her 2003 essay, Spoon Theory, Christine Miserandino describes what it feels like to live with chronic illness. She tells the story of being with her friend in a diner when the friend asked her what it felt like to have Lupus. Christine went around the diner and collected twelve spoons from nearby tables. She … Continue reading Outta Spoons
Just a couple of days ago, the FDA approved a new treatment for my disability, Spinal Muscular Atrophy (SMA). It is called Evrysdi (the chemical compound was called Risdiplam) and, unlike the previous major therapy, Spinraza, it comes in the form of a pill rather than a spinal injection. This means that people like me … Continue reading To Cure or Not to Cure?
This week I was talking to a friend online (as I often do these days) and we were discussing the different models of disability. The changing model of disability has always been a really interesting concept to me, not only because it legitimizes and makes concrete some of the more abstract concepts that I struggle … Continue reading Introduction to the Models of Disability
As you may have heard elsewhere, today is the 30th anniversary of the passage of the Americans with Disabilities Act (ADA). Before the ADA was passed, public facilities were only required to be accessible if they received federal funding. The ADA widened the net of protections and has been the most substantial legal step towards … Continue reading The ADA Turns 30!
While I'm not going to promise that this will be my last COVID-related post, I do promise that I will change the subject after this week. I know it's been a lot for everybody both inside and outside of the disability community to hear about constantly, but it's important that we don't forget that people … Continue reading “Sorry, But That’s Impossible”: Accommodations in the Age of COVID-19
Sometimes I'll come up with an idea for a blog post and spend like weeks hyping it up in my own mind before I write it. Then, by the time I get to it I draw a complete blank about what to say. This is one of those posts. How do I even begin talking … Continue reading The One Where I Talk About COVID-19