… and rolls around
In her 2003 essay, Spoon Theory, Christine Miserandino describes what it feels like to live with chronic illness. She tells the story of being with her friend in a diner when the friend asked her what it felt like to have Lupus. Christine went around the diner and collected twelve spoons from nearby tables. She… Continue reading Outta Spoons
Just a couple of days ago, the FDA approved a new treatment for my disability, Spinal Muscular Atrophy (SMA). It is called Evrysdi (the chemical compound was called Risdiplam) and, unlike the previous major therapy, Spinraza, it comes in the form of a pill rather than a spinal injection. This means that people like me… Continue reading To Cure or Not to Cure?
Sometimes I'll come up with an idea for a blog post and spend like weeks hyping it up in my own mind before I write it. Then, by the time I get to it I draw a complete blank about what to say. This is one of those posts. How do I even begin talking… Continue reading The One Where I Talk About COVID-19
When I wrote my last substantial post two years ago, I was winding up for my first year of law school, bright-eyed, bushy-tailed, and ready to take on a new journey. Well, now I'm two years in and have one year left and I can say that going to law school has been the best… Continue reading Law School
Trigger Warning: Suicide, illness Growing up, I was in the hospital A LOT. I had severe respiratory illnesses all throughout my childhood multiple times a year, and every time I would get sick, my parents would be by my side as often as they could be. I was pretty much never alone in the hospital… Continue reading Mental Health Part Three – I’m Not a Burden
My parents often tell me about an experience they went through right before I started elementary school. They had a meeting with my principal where they took a tour of the school and made sure that it would be accessible and right for me. It was a public school, but they still wanted to make… Continue reading Access to Education
In the Spring of 2012, when I was studying film at Mizzou, I got an email about a study abroad course for my major. Now, Film Studies was a relatively new major at the school so study abroad opportunities for it were basically nonexistent. I was psyched. after looking closer at the email, I learned… Continue reading My Trip to Greece
It may be surprising for those who don't already know that traveling with a disability can be very difficult, but is not often impossible. For those of us with mobility issues, we have to think about accessibility laws where we're going if we're unfamiliar, how we will physically get there (trains, buses, cars, and planes… Continue reading Traveling with a Mobility Impairment
In my last post, I talked about the difficulty that a lot of disabled people, myself included, experience when dating. One of the things I did not mention is that it can sometimes be difficult to find accessible places that are fun to go to and fun to have a date at. Since it's getting… Continue reading 12 Wheelchair-Accessible Date Ideas
Do you remember your worst date? Does the memory of it make you cringe? Mine does. My worst date was with a guy I met on OkCupid. He lived 45 minutes away in the outskirts of town so when we decided to finally meet in person, we picked a Burger King that was halfway between… Continue reading Dating While Disabled
