Just a couple of days ago, the FDA approved a new treatment for my disability, Spinal Muscular Atrophy (SMA). It is called Evrysdi (the chemical compound was called Risdiplam) and, unlike the previous major therapy, Spinraza, it comes in the form of a pill rather than a spinal injection. This means that people like me… Continue reading To Cure or Not to Cure?
This week I was talking to a friend online (as I often do these days) and we were discussing the different models of disability. The changing model of disability has always been a really interesting concept to me, not only because it legitimizes and makes concrete some of the more abstract concepts that I struggle… Continue reading Introduction to the Models of Disability