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Month: August 2020

To Cure or Not to Cure?

August 8, 2020 / Gabriella / 8 Comments

Just a couple of days ago, the FDA approved a new treatment for my disability, Spinal Muscular Atrophy (SMA). It is called Evrysdi (the chemical compound was called Risdiplam) and, unlike the previous major therapy, Spinraza, it comes in the form of a pill rather than a spinal injection. This means that people like me … Continue reading To Cure or Not to Cure?

Introduction to the Models of Disability

August 2, 2020 / Gabriella / 4 Comments

This week I was talking to a friend online (as I often do these days) and we were discussing the different models of disability. The changing model of disability has always been a really interesting concept to me, not only because it legitimizes and makes concrete some of the more abstract concepts that I struggle … Continue reading Introduction to the Models of Disability

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A Note About Language

Although people-first language has previously been thought of as the least offensive way to discuss disability, I prefer to use identity-first language through terms like “disabled person” instead of “person with a disability.” I find that this makes my writing easier to read and it legitimizes disability as a positive identity trait rather than one that negates humanity. I do not mean to invoke any negative feelings about appropriate terminology.  Please contact me through my contact page if I am using otherwise inappropriate or offensive terms.

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    • Mental Health
      • Mental Health Part One – A Long-Term Problem
      • Mental Health Part Two – The Importance of Being Social
      • Mental Health Part Three – I’m Not a Burden
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      • Special Announcement
      • Disability in Media – A Primer
      • Mutant and Proud: Disability Lessons from X-Men
      • 5 Disability-Positive Halloween Movies (2017 Edition)
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